Claire believes that policies and practice regarding financial and other support for caregivers must be flexible from person to person.
Transcript
Yeah, the financing of support, and being able to have outside caregivers in the home when they’re needed. And everyone needs such a different level of support, or wants such a different level of support, but there should be some flexibility in that. And some choice around whether caregivers are working and doing the majority of the care or not. Just like mothers should have the choice to be at home with their children or go to work, it’s that same kind of thing. We all have different skills, and different desires, and different ways of fulfilling ourselves, so I think flexibility and allowing caregivers to balance their own lives too. So, the support needs to be there for caregivers. Financial support for caregivers, if we decide to be the main care at home, I think, is something that is invaluable.
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- Travelling, holidays and respite – ClaireAirplanes are not adequately accessible, so Claire and her husband stopped using air travel.
- Social impact and lifestyle changes – ClaireClaire and Luke are not always able to attend get-togethers with family and friends because their homes are not accessible.
- Advice for professionals and society 2 – ClaireClaire believes that policies and practice regarding financial and other support for caregivers must be flexible from person to person.
- Advice for professionals and society – ClaireClaire suggests that health professionals ask for the caregivers’ perspective. Some care decisions may impact their lives in ways you may not realize.
- Advice for friends and family – ClaireTry to find an alternative solution if it is not possible for the care recipient come over. Claire recommends having a meal somewhere else, or making dinner yourself and bringing it over.
- Becoming a caregiver – ClaireClaire and Luke got married two years after meeting online. Claire learned of Luke’s disability before meeting him in person